Tag Archives: EpiPens

EpiPens in Maine

Lawmakers in Maine are considering a bill all states should pass: “to allow pharmacists to prescribe and dispense EpiPens at no cost to the patient.”

See the article here:

MAINE LAWMAKER’S PROPOSAL TO MAKE EPIPEN MORE ACCESSIBLE

Every six months we have to shell out sooooo much money to purchase two sets of the generic version. (4 sets total: 2 for each child – one for school and one for home) While we feel thankful to be reimbursed for more than 3/4th of each set, that’s still a ridiculous amount of money!

Whenever I pick them up at the pharmacy, I always think about how many people… kids… babies don’t have the necessary protection that these devices bring because of the insanely high, immoral cost!

But like always, we must reflect on how blessed we are…

on how much TJ has improved since his first anaphylactic reaction …

and how we truly believe his body as well as Madi’s will be restored from all of these allergies.

But in the meantime, we stay prepared, always with two sets on hand.

Go Maine, let’s get more states on board!

Jerry the Bear

Found this pretty cool so I had to share and smile on…

 

It’s Not Easy When You’re a Kid with Diabetes or Food Allergies – Here’s Something That Helps – A Lot

Source: http://www.upworthy.com/

TEDDY BEAR

Auvi-Q Return & Reimbursement Process

The following link has an update on the Auvi-Q recall and the reimbursement process involved.   I was just able to speak with a representative to have a return packet sent to us.   Check it out and share this information to help us smile on…

Auvi-Q Return & Reimbursement Process

Source: http://snacksafely.com/

AUVI-Q

Back to the Crucial Basics: How to Use an EpiPen

Whether you have a food allergy or not, it is crucial to understand the basics.   The following link contains valuable information, guidelines, tips, and even a video about food allergies, anaphylaxis, and EpiPens.   Helping in being prepared, we smile on…

https://www.epipen.com/about-epipen/how-to-use-epipen

Source: https://www.epipen.com/en/

tj cartoon

Stocking Epinephrine

The following article made me really think about how much could and should be changed regarding stock epinephrine.  Just because you were not born with an allergy does not mean you will never develop one.   Therefore, I believe it is critical to have a supply of life-saving epinephrine auto-injectors available in all schools, restaurants, airplanes, ambulances, etc.   In our experience with my son’s anaphylactic reaction, we were lucky.   Since we had no idea about his food allergies, we had no epinephrine with us nor did the ambulance that picked us up that snowy December evening.   Because we know how lucky and blessed we were, we know we need to do more in this area in order to continue to smile on in safety…

“As we have defibrillators on the wall in many public entities, wouldn’t it behoove us to have life saving epinephrine auto-injectors in public places like schools and airplanes?

Read the entire article here and let me know your thoughts: http://www.huffingtonpost.com/lianne-mandelbaum/no-do-overs-with-food-allergies-only-tragic-endings_b_8196658.html

Source: http://www.huffingtonpost.com/parents/

How to stay safe with food allergies on the rise

Auvi-Q Recall & EpiPen Availability

In the following article, Mylan Specialty which markets and distributes EpiPens published the statement below:

“Mylan confirms that EpiPen® and EpiPen Jr® (epinephrine injection) Auto-Injectors are not affected by the Auvi-Q® recall, and the company has sufficient supply of EpiPen® Auto-Injector to meet any anticipated demand.”

Check out the full article here: http://newsroom.mylan.com/2015-10-29-Mylan-Confirms-Availability-of-EpiPen-epinephrine-injection-Auto-Injector-for-U-S-Patients-Affected-by-Sanofis-Auvi-Q-epinephrine-injection-USP-Recall


However, on Thursday when I went to our local CVS pharmacy to pick up our two new sets of EpiPens to replace our Auvi-Qs (one for daycare and one for us), I was told that they only had one left and that they did not know when they would be receiving more.   Because it is not their fault at all, I remained calmed and used some humor to lighten the mood. (The woman seemed to be having a stressful day.) As I was leaving another worker whispered to me, “call back every day around 6 pm after the shipment comes.”

When I called back yesterday, I was told that many larger pharmacies like CVS may not be receiving more EpiPens for awhile or at least they have no clue as to when they will receive more.  This is due to the distribution process used.   The man I spoke to also suggested reaching out to smaller pharmacies in the area to see if they have some available.  If so, they could transfer the prescription over to them.  The first place we called would have EpiPens available today! Because we hope that we can help even just one person with this information and our experience, we smile on…

tj cartoon

Aterica Digital Health

I thought that this was such an interesting and great idea so wanted to share! Love that there are so many creative people (companies) out there inventing products to help keep people with life-threatening food allergies safe… so we smile on…

https://www.aterica.com/

LOVE