Tag Archives: EpiPens

EpiPens in Maine

Lawmakers in Maine are considering a bill all states should pass: “to allow pharmacists to prescribe and dispense EpiPens at no cost to the patient.”

See the article here:

MAINE LAWMAKER’S PROPOSAL TO MAKE EPIPEN MORE ACCESSIBLE

Every six months we have to shell out sooooo much money to purchase two sets of the generic version. (4 sets total: 2 for each child – one for school and one for home) While we feel thankful to be reimbursed for more than 3/4th of each set, that’s still a ridiculous amount of money!

Whenever I pick them up at the pharmacy, I always think about how many people… kids… babies don’t have the necessary protection that these devices bring because of the insanely high, immoral cost!

But like always, we must reflect on how blessed we are…

on how much TJ has improved since his first anaphylactic reaction …

and how we truly believe his body as well as Madi’s will be restored from all of these allergies.

But in the meantime, we stay prepared, always with two sets on hand.

Go Maine, let’s get more states on board!

Jerry the Bear

Found this pretty cool so I had to share and smile on…

 

It’s Not Easy When You’re a Kid with Diabetes or Food Allergies – Here’s Something That Helps – A Lot

Source: http://www.upworthy.com/

TEDDY BEAR

Auvi-Q Return & Reimbursement Process

The following link has an update on the Auvi-Q recall and the reimbursement process involved.   I was just able to speak with a representative to have a return packet sent to us.   Check it out and share this information to help us smile on…

Auvi-Q Return & Reimbursement Process

Source: http://snacksafely.com/

AUVI-Q

Back to the Crucial Basics: How to Use an EpiPen

Whether you have a food allergy or not, it is crucial to understand the basics.   The following link contains valuable information, guidelines, tips, and even a video about food allergies, anaphylaxis, and EpiPens.   Helping in being prepared, we smile on…

https://www.epipen.com/about-epipen/how-to-use-epipen

Source: https://www.epipen.com/en/

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Stocking Epinephrine

The following article made me really think about how much could and should be changed regarding stock epinephrine.  Just because you were not born with an allergy does not mean you will never develop one.   Therefore, I believe it is critical to have a supply of life-saving epinephrine auto-injectors available in all schools, restaurants, airplanes, ambulances, etc.   In our experience with my son’s anaphylactic reaction, we were lucky.   Since we had no idea about his food allergies, we had no epinephrine with us nor did the ambulance that picked us up that snowy December evening.   Because we know how lucky and blessed we were, we know we need to do more in this area in order to continue to smile on in safety…

“As we have defibrillators on the wall in many public entities, wouldn’t it behoove us to have life saving epinephrine auto-injectors in public places like schools and airplanes?

Read the entire article here and let me know your thoughts: http://www.huffingtonpost.com/lianne-mandelbaum/no-do-overs-with-food-allergies-only-tragic-endings_b_8196658.html

Source: http://www.huffingtonpost.com/parents/

How to stay safe with food allergies on the rise

Auvi-Q Recall & EpiPen Availability

In the following article, Mylan Specialty which markets and distributes EpiPens published the statement below:

“Mylan confirms that EpiPen® and EpiPen Jr® (epinephrine injection) Auto-Injectors are not affected by the Auvi-Q® recall, and the company has sufficient supply of EpiPen® Auto-Injector to meet any anticipated demand.”

Check out the full article here: http://newsroom.mylan.com/2015-10-29-Mylan-Confirms-Availability-of-EpiPen-epinephrine-injection-Auto-Injector-for-U-S-Patients-Affected-by-Sanofis-Auvi-Q-epinephrine-injection-USP-Recall


However, on Thursday when I went to our local CVS pharmacy to pick up our two new sets of EpiPens to replace our Auvi-Qs (one for daycare and one for us), I was told that they only had one left and that they did not know when they would be receiving more.   Because it is not their fault at all, I remained calmed and used some humor to lighten the mood. (The woman seemed to be having a stressful day.) As I was leaving another worker whispered to me, “call back every day around 6 pm after the shipment comes.”

When I called back yesterday, I was told that many larger pharmacies like CVS may not be receiving more EpiPens for awhile or at least they have no clue as to when they will receive more.  This is due to the distribution process used.   The man I spoke to also suggested reaching out to smaller pharmacies in the area to see if they have some available.  If so, they could transfer the prescription over to them.  The first place we called would have EpiPens available today! Because we hope that we can help even just one person with this information and our experience, we smile on…

tj cartoon

Aterica Digital Health

I thought that this was such an interesting and great idea so wanted to share! Love that there are so many creative people (companies) out there inventing products to help keep people with life-threatening food allergies safe… so we smile on…

https://www.aterica.com/

LOVE

How Does Epinephrine Turn Off an Allergic Reaction?

By now, most of us know that EpiPens and Auvi-Qs are both used to used to treat anaphylaxis, life-threatening allergic reactions.  However, who really knows how these life-saving injectors really work? I know that I did not so I found this article extremely informative.  Starting the weekend off a little smarter, we smile on.

Check it out ….

How Does Epinephrine Turn Off an Allergic Reaction

Source: http://allergicliving.com/

LOVE

When Your Baby Has a Food Allergy

This is an excellent article about an experience very close to home. As always, because sharing is caring, we smile on…

Special thanks to Nutricia, maker of Neocate®, for supporting our educational blog series on managing food allergies in infants and toddlers. This post is the first in a three-part series.

By: Gina Clowes, Director of Education, FARE

ginaandson
I was so happy to see my 8 month-old son Daniel enjoying homemade split pea soup. But I wondered about the pinkness I saw around his mouth. By the time I got a washcloth, I saw a look of panic in his eyes. Then came the vomiting. After a stressful trip to the pediatrician’s office, and confirmation of yet another food allergy, he was no worse for wear by that evening. I, on the other hand, still feel a twinge of mommy-guilt when I see his scared face in my mind’s eye.

When your baby is diagnosed with food allergies, it is life-changing. Whether it is “only” one allergy or multiple food allergies…

View original post 623 more words

Your Ignorance is Not Bliss

According to Wikipedia,Ignorance is a state of being uninformed (lack of knowledge)  The word ignorance is an adjective describing a person in the state of being unaware and used as an insult to describe individuals who  deliberately ignore or disregard important information or facts.”

IGNORANCE


With that being said, I do not mean any of this as an insult, instead it is meant in a way that will educate others so that TJ can enjoy a safe, healthy life like he deserves. While food allergies and eczema do not define TJ, it is important that others understand how they currently affect his life.

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Yes, if you are allergic to milk, it is not just milk you avoid, it’s the millions of foods that contain milk too. It’s cheese, it’s yogurt, it’s goldfish crackers, it’s endless foods….You don’t know how many times people innocently have made related comments to me like the one above. I challenge you to read some labels and you’ll be surprised as to what you find.

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I get it. I totally get that sometimes people would rather not know of all the dangers to save themselves from the worry…the pain… the possibilities… the reality. I get it because sometimes I have found that not knowing is way easier than facing reality. Heck, I use to think it was super cute that TJ would reach for my pizza on Friday nights and often debated letting him touch or lick it.  At five months, he was so curious and interested; therefore, I felt like he was very ready to start solids. That was my own ignorance. Something always held me back from allowing that though.   That was my mommy’s instinct.

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However, in the world of food allergies, ignorance is deadly. In the past, I have read, heard, and even thought to myself, “this is a little much” when asked to comply to a related request. In those times no matter how much of an empathetic person I am, I was ignorant. I chose to text on my phone and half listen during meetings about food allergies and EpiPens. That was not okay. Just like it is not okay to “multi-task” during any talk, meeting, or workshop about anyone’s health and safety especially when people’s lives depend on it.

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Since some of my earliest childhood memories, I admit that I do have a tendency to worry and overreact at times. I admit that what many people may have viewed and may still view as overreacting and being dramatic is really my passion and voice shining through. I don’t know how to take on something without putting my heart and soul in it. With protecting my son, ignorance, even for a second, thinks that I’m being dramatic. It’s not drama, it’s about safety, it’s about life.

As parents, I am learning that part of us will always worry. We will worry in moments our children are near and those times that they are far. When we survive their first day of preschool, then we will come to all the other firsts. First day of kindergarten… First day of middle school.. First day of high school… First day they drive … First day of college… First date… There will always be a new first which will bring on a wonderful new stage of this journey; however, with it will come a new reason to worry. I get it and I am ready for it. The part of it that I wish wasn’t working against us is the ignorance.

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Now, this ignorance that I worry about is more than just the people who roll their eyes behind my back or talk about how I need to relax. It’s more than the people who even though they may not mean to be, are and have labeled me as “the crazy allergy mom,” thus, labeling TJ as the adorable guy with overprotective parents. It’s more than that. To be honest, that’s not that ignorance that really terrifies me.

  • Instead, it is the person who believes that not washing their hands one time before feeding TJ is no big deal…
  • It is the person that believes giving him a kiss on the cheeks after eating lunch before brushing their teeth is not going to do any harm…
  • It is the person who thinks allowing him to use the finger paint for a “quick” art project is okay…
  • And the scariest one … The person who thinks that TJ eating one Cheerio or goldfish that he found hidden on the ground is no big deal especially if he doesn’t have any initial reactions. In that case, because his known allergies are present in that one tiny piece of food and allergic reactions can be delayed and sooooo unpredictable,  according to his Food Allergy and Anaphylaxis Emergency Care Plan, someone must administer his Epi-Pen or Auvi-Q and call 911. Reactions don’t have to be immediate but action must be in order to save lives.

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I pray that although ignorance exists everywhere, that I am helping to educate others by breaking down these walls and opening eyes and hearts instead.

I pray that you battle down that ignorance and allow your mind and heart to really listen, to really understand, to respect. When you are sitting in the next meeting at work learning about safety procedures including signs of an allergic reaction and administering an Epi-pen, ignorance is torn apart a bit more when put your phone down for a minute and truly listen.

When you are informed that your child’s school or classroom is peanut and tree nut free, Ignorance is battled away if you ignore those “another crazy allergy parent.” When you hear anyone or read of people still sending food that may contain nuts in or admitting that they don’t really check labels like their daycare asked them to, ignorance is slapped in the face when even a parent who does not have any children with food allergies speaks up.  Or, when the teacher checks the food labels in the morning and calls for a replacement lunch.

When you start to write off listening to any talk about allergies because you understand how annoying they are since you have always had seasonal allergies, ignorance begins to be erased when you acknowledge it’s more than these seasonal allergies.

Last but definitely not least, as I sit in my school’s Epi-pen training at the start of this school year, it will reach me in a way that it has never before. It will bring me back to TJ’s first taste of yogurt and to his anaphylactic reaction that happened instantly. In that moment, my own ignorance was exposed as I was forced to defeat it in just a moment. In a moment when I did not know what would happen next as we rode in an ambulance to the hospital. In that moment, my life was forever changed. It’s not only my job to advocate and protect TJ, but also to educate and defeat the ignorance that exists about the world of food allergies. I pray that you will think twice before dismissing a letter from school or a meeting at work. Instead, I pray more people will listen with an open mind and heart.

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The reality is this is more than just TJ’s story, it is the scary truth of food allergies.   Anyone can develop a food allergy at any point of their lives.   Therefore, the first step is to put your ignorance aside and allow yourself to become educated.

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One of my favorite quotes is the one above.   It talks about the importance of being empathetic and kind always because you never know what the person next to you is truly battling.   While I try to live my life according to that advice, there are some battles like food allergies that are out in the open. With so much information to share about it, a person like TJ should never have to battle against people turning their heads to it.  Please don’t let my son’s battle be your ignorance.

As always, thank you for reading my post.  As we continue to educate others, we smile on…