Tag Archives: EpiPens

6 Years Ago & Grateful

This past weekend TJ had a moment of frustration about his allergies. It was the first time in 6.5 years of his life that he had spoken up and said that sometimes he gets frustrated. He is currently still allergic to dairy, eggs and peanuts. He went on to explain that he knows dairy is in a lot of foods. So he vented and we listened. Then we came up with a game plan for what new recipes we could try that were safe and yummy for all of us. That made him happy and so excited.

It was both heartbreaking and precious. But we also agreed we needed to continue to pray and believe that one day he would outgrow more, if not ALL of them. And trust me… we believe!

The next day as I was scrolling on my social media page, I saw a memory of TJ from 6 years ago. Those cozy, adorable pajamas were ones I could never forget. Instantly, I was brought back to that late afternoon. It was the last picture I had taken right before his first allergic and anaphylactic reaction…

6 years ago…

I remember it like it was yesterday …

It was a snowy, December evening when I gave him that tiny spoonful of yogurt for the first time.

I remember the highest level of fear I have ever felt. I remember the terrifying ride in the ambulance that had no epi-pen jr. in it. I remember holding an oxygen mask over his face, praying that he would continue to cry because… crying meant he was still breathing!

But I also remember 45 minutes later and being so thankful to have gotten there in time.

I remember the doctors in the emergency room being so comforting …

I also remember the triumph…

I also remember watching TJ’s resilience that those 21 food allergies could not erase. I remember his smile…

I remember his smile when he saw us standing there.

Back then I used to say, “I’ll be happy when …”

… all the allergies are gone …

Or

… when I have more money…

Or

… when I get to go to Disney World with my kids…

But then I see their smiles…

Then I saw his smile…

And I read God’s word more and more and I realized joy is not something we wait for.

Joy is a gift from the Lord.

So I celebrate the allergy count dropping from 21 food allergies to 3. I celebrate the here and the now because God is here and now. And He is always working!

“I have told you this so that my joy may be in you and that your joy may be complete.”
‭‭John‬ ‭15:11‬ ‭NIV‬‬

So I am grateful. I am joyful. I am hopeful.

Right here and right now.

EpiPens in Maine

Lawmakers in Maine are considering a bill all states should pass: “to allow pharmacists to prescribe and dispense EpiPens at no cost to the patient.”

See the article here:

MAINE LAWMAKER’S PROPOSAL TO MAKE EPIPEN MORE ACCESSIBLE

Every six months we have to shell out sooooo much money to purchase two sets of the generic version. (4 sets total: 2 for each child – one for school and one for home) While we feel thankful to be reimbursed for more than 3/4th of each set, that’s still a ridiculous amount of money!

Whenever I pick them up at the pharmacy, I always think about how many people… kids… babies don’t have the necessary protection that these devices bring because of the insanely high, immoral cost!

But like always, we must reflect on how blessed we are…

on how much TJ has improved since his first anaphylactic reaction …

and how we truly believe his body as well as Madi’s will be restored from all of these allergies.

But in the meantime, we stay prepared, always with two sets on hand.

Go Maine, let’s get more states on board!

Jerry the Bear

Found this pretty cool so I had to share and smile on…

 

It’s Not Easy When You’re a Kid with Diabetes or Food Allergies – Here’s Something That Helps – A Lot

Source: http://www.upworthy.com/

TEDDY BEAR

Auvi-Q Return & Reimbursement Process

The following link has an update on the Auvi-Q recall and the reimbursement process involved.   I was just able to speak with a representative to have a return packet sent to us.   Check it out and share this information to help us smile on…

Auvi-Q Return & Reimbursement Process

Source: http://snacksafely.com/

AUVI-Q

Back to the Crucial Basics: How to Use an EpiPen

Whether you have a food allergy or not, it is crucial to understand the basics.   The following link contains valuable information, guidelines, tips, and even a video about food allergies, anaphylaxis, and EpiPens.   Helping in being prepared, we smile on…

https://www.epipen.com/about-epipen/how-to-use-epipen

Source: https://www.epipen.com/en/

tj cartoon

Stocking Epinephrine

The following article made me really think about how much could and should be changed regarding stock epinephrine.  Just because you were not born with an allergy does not mean you will never develop one.   Therefore, I believe it is critical to have a supply of life-saving epinephrine auto-injectors available in all schools, restaurants, airplanes, ambulances, etc.   In our experience with my son’s anaphylactic reaction, we were lucky.   Since we had no idea about his food allergies, we had no epinephrine with us nor did the ambulance that picked us up that snowy December evening.   Because we know how lucky and blessed we were, we know we need to do more in this area in order to continue to smile on in safety…

“As we have defibrillators on the wall in many public entities, wouldn’t it behoove us to have life saving epinephrine auto-injectors in public places like schools and airplanes?

Read the entire article here and let me know your thoughts: http://www.huffingtonpost.com/lianne-mandelbaum/no-do-overs-with-food-allergies-only-tragic-endings_b_8196658.html

Source: http://www.huffingtonpost.com/parents/

How to stay safe with food allergies on the rise

Auvi-Q Recall & EpiPen Availability

In the following article, Mylan Specialty which markets and distributes EpiPens published the statement below:

“Mylan confirms that EpiPen® and EpiPen Jr® (epinephrine injection) Auto-Injectors are not affected by the Auvi-Q® recall, and the company has sufficient supply of EpiPen® Auto-Injector to meet any anticipated demand.”

Check out the full article here: http://newsroom.mylan.com/2015-10-29-Mylan-Confirms-Availability-of-EpiPen-epinephrine-injection-Auto-Injector-for-U-S-Patients-Affected-by-Sanofis-Auvi-Q-epinephrine-injection-USP-Recall


However, on Thursday when I went to our local CVS pharmacy to pick up our two new sets of EpiPens to replace our Auvi-Qs (one for daycare and one for us), I was told that they only had one left and that they did not know when they would be receiving more.   Because it is not their fault at all, I remained calmed and used some humor to lighten the mood. (The woman seemed to be having a stressful day.) As I was leaving another worker whispered to me, “call back every day around 6 pm after the shipment comes.”

When I called back yesterday, I was told that many larger pharmacies like CVS may not be receiving more EpiPens for awhile or at least they have no clue as to when they will receive more.  This is due to the distribution process used.   The man I spoke to also suggested reaching out to smaller pharmacies in the area to see if they have some available.  If so, they could transfer the prescription over to them.  The first place we called would have EpiPens available today! Because we hope that we can help even just one person with this information and our experience, we smile on…

tj cartoon

Aterica Digital Health

I thought that this was such an interesting and great idea so wanted to share! Love that there are so many creative people (companies) out there inventing products to help keep people with life-threatening food allergies safe… so we smile on…

https://www.aterica.com/

LOVE

How Does Epinephrine Turn Off an Allergic Reaction?

By now, most of us know that EpiPens and Auvi-Qs are both used to used to treat anaphylaxis, life-threatening allergic reactions.  However, who really knows how these life-saving injectors really work? I know that I did not so I found this article extremely informative.  Starting the weekend off a little smarter, we smile on.

Check it out ….

How Does Epinephrine Turn Off an Allergic Reaction

Source: http://allergicliving.com/

LOVE

When Your Baby Has a Food Allergy

This is an excellent article about an experience very close to home. As always, because sharing is caring, we smile on…

Special thanks to Nutricia, maker of Neocate®, for supporting our educational blog series on managing food allergies in infants and toddlers. This post is the first in a three-part series.

By: Gina Clowes, Director of Education, FARE

ginaandson
I was so happy to see my 8 month-old son Daniel enjoying homemade split pea soup. But I wondered about the pinkness I saw around his mouth. By the time I got a washcloth, I saw a look of panic in his eyes. Then came the vomiting. After a stressful trip to the pediatrician’s office, and confirmation of yet another food allergy, he was no worse for wear by that evening. I, on the other hand, still feel a twinge of mommy-guilt when I see his scared face in my mind’s eye.

When your baby is diagnosed with food allergies, it is life-changing. Whether it is “only” one allergy or multiple food allergies…

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