Tag Archives: Anaphylactic

Food Allergy Awareness Week- May 12-18, 2019

This week is food allergy awareness week. It is the perfect opportunity to raise awareness about food allergies and anaphylaxis, and help remove the isolation that can be associated with having an allergy.

Food allergies like many diagnosis in life have the ability to isolate, ONLY if we let it…

The first step in eliminating ignorance is to EDUCATE! So here it goes…

  • 1 in every 13 children in America has a food allergy. That is two in every classroom!
  • Food allergies can be life threatening and need to be taken seriously.
  • Strict avoidance of the allergen is the ONLY way to prevent a reaction.
  • 35% of children with allergies have been bullied due to their allergy. That. Is. Not. Okay. Bullying is NEVER okay!
  • People can be allergic to ANYTHING! However, 90% of children are allergic to the top 8 allergens:
  1. Milk
  2. Eggs
  3. Peanuts
  4. Tree nuts (all nuts other than peanuts)
  5. Fish
  6. Shellfish
  7. Wheat
  8. Soybeans
  9. Sesame (which still does not yet have to be labels on food packaging)
  • The top 8 allergens must be labeled on packaging.
  • However, more than 170 foods have been reported to cause allergic reactions.

The symptoms can range from mild to moderate ones like hives and stomach pain to severe ones like anaphylaxis, a severe and potentially life-threatening allergic reaction). Reactions are NOT all the same. Symptoms can change from reaction to reaction. Just because someone didn’t have an anaphylactic reaction the first time, doesn’t mean they can’t the next. Also, just because you were not born with an allergy, does not mean you can not develop one.

* These facts are not to provoke fear, but instead to spark awareness and instill understanding. Once we have the facts, we combat the fear that tries to associate itself with it all … with faith.

“But now, this is what the Lord says— he who created you, Jacob, he who formed you, Israel: “Do not fear, for I have redeemed you; I have summoned you by name; you are mine.”

‭‭Isaiah‬ ‭43:1‬ ‭NIV‬‬

https://www.bible.com/111/isa.43.1.niv


What is important for us all to know?

  • Reactions DO NOT just happen when someone ingests the allergen itself.

    • They can happen due to cross contact (the presence of unintended allergens), inhaling it, and from saliva (sharing utensils, instruments, chapstick, drinks, kissing).

    • My son’s last reaction at the age of 2.5 was this type of reaction. He had tried a new oat milk and while the company did not have the container labeled for it, the production lines were not thoroughly cleaned from his other allergens. Thus, it caused a reaction that was less severe and very different from his initial one, but still needed epinephrine and a trip to the ER.

    • Cross contact issues and food allergies in general take diligence. Just because the product dues not have the cross contact information labeled doesn’t mean we don’t need to call the companies or do more researching and double checking on line. Also, even products that we have used for years, we still must double check their labels as companies sometimes change the makeup and ingredients in their products. It is not a burden; it is a way of life that ensures safety.

  • Many of these people must carry EpiPens (Epinephrine) with them everywhere they go. It’s beneficial for everyone to know how to use an EpiPen. So reach out to someone who is trained in it and ask to learn. It does not take long to learn, but it also does not take long to react and need assistance. So spend the time now. It is greatly appreciated.

What can we all do? – nationwide initiatives to get involved with

Join the Teal Pumpkin Project

  • Halloween can be a difficult time for those with allergies.
  • This project promotes safety, inclusion and respect of individuals managing food allergies.

How can you participate?

  • Provide non-food treats for trick-or-treaters (see FARE website for suggestions)
  • Place a teal pumpkin (the color of food allergy awareness) in front of your home to indicate you have non-food treats available
  • Spread the word! Tell your families, friends and neighbors about this initiative.

Snack Safely

  1. Check out the Snack Safely website.
  2. This is a site that has safe snacks and foods for those with allergies.  
  3. Schools use this. We all should use this. 
  4. When you are planning an event or party, check it out to ensure everyone is safe and included. It’s not always easy or convenient to “think outside of the box.” But, that’s often where the difference is made. What may seem small to one person is huge to another.  “No act of kindness, no matter how small, is ever wasted.”Aesop

Turn It Teal

  • Teal is the color that represents food allergy awareness.
  • This initiative started in 2014 and now their mission has expanded into going throughout the country, lighting up buildings, bridges, and attractions in teal everywhere.
  • You don’t need to light up a building to spread awareness. You can do this at your school, work or church, by setting a day in May to “turn it teal” and encourage everyone to wear teal! We are doing this at my work this Friday!
  • For more information: Turn it Teal

What can we do? – ways to help everyday

Be Mindful

  1. Wash your hands after eating.
  2. Wipe down surfaces after eating an allergen.
  3. Don’t share food or utensils.

Empathy/Ask

  1. Get the specifics. Find out which foods your friends, family members, classmates, co workers, church members, etc. are allergic to and what the symptoms of a reaction are.
  2. Simply be aware and have an open mind to it. Empathy goes a long way.
  3. If hosting an event, ask what products and foods are safe.
  4. Take it seriously. It is not a joking matter.

Like with anything in life, listening wholeheartedly and empathetically goes a long way. So while our messy counter top may not have everything others have on it, we all deserve to feel included, safe and loved.

For more information, visit: FARE website

 

 


“Peace requires everyone to be in the circle – wholeness, inclusion.” – Isabel Allende

 “When everyone is included, everyone wins.” – Jesse Jackson

 “Alone we can do so little, together we can do so much.” – Helen Keller

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Surround Yourself

Who and what do you surround yourself with?

In a world inundated with negativity, it is crucial to surround yourself with the opposite, positivity. I’m not saying we should walk on a delusional path, ignorant to the realities of the world. I am simply saying that it is important we do not transform to them.

Even the Bible warns about it:

“Do not be deceived: Bad company ruins good morals.”- 1 Corinthians 15:33

“Whoever walks with the wise becomes wise, but the companion of fools will suffer harm.” – Proverbs 13:20

and one of my favorites:

“Do not be conformed to this world, but be transformed by the renewal of your mind, that by testing you may discern what is the will of God, what is good and acceptable and perfect.” -Romans 12:2

But it’s not just about people, it’s about everything. What is your mind seeing every day? Whatever it is, it is setting up a platform on which you will focus.

Living most of my life with incredible anxiety, I know this all too well. The vicious cycle that captures our minds like prey. This was most recently experienced after my daughter was born. While I couldn’t admit it at the time, I suffered from postpartum anxiety which teamed up with the post traumatic stress disorder that still lingered from my son’s anaphylactic reaction years before.

During this time, the last thing I needed was more negativity, but it was everywhere. Every other post on Facebook had it. The news that was on television. The news that people told me. What I was google searching… what I was searching for… what I was reading… turned into what I was thinking… It. Was. Everywhere.

Until I had a huge wake up call, I was choosing what to surround myself with. Sure, it was all out there, the negativity our society sometimes seems to sickly crave, the accidents we can’t turn our eyes from. However, it was my own choice if I looked or turned away to something else.

So I decided then during a session of breastfeeding my daughter I would gradually take control back from this vicious cycle once and for all.

That was when I started to google search positive quotes and song lyrics, leaving them on my phone to see when I went to text. Or when I would try to search up something fearful, I would see Bible scriptures of hope in the search engine and screen, then reminding myself to put the phone down. I started to plant seeds of positivity everywhere… my phone, my phone cover, my keychains, my computer screens, my ID holder, my classroom, etc.

Unlike the keys we must carry to get where we need to go each day, we do not need to carry the weight of the world’s negativity with us. Instead, learn to surround yourself with positive people who empower you and your life with reminders of all that is good in this world. Because the truth is… there really is sooo much good, just waiting to be seen.

There is so much beauty in the world if you train your eyes to see it. And if for some reason, you don’t see it… create it, become it, be it! That is why I embrace the mess because it is surrounded by goodness.

Honey Oat Bites

I love granola bars.   Over the years, I have gone through phases of several brands.   However, the more and more I learn about food; the more and more I want to create our own version.   A very close friend of mine shared a similar recipe with us back in March of 2018; however, it used peanut butter.   Therefore, we switched it up and made it safe for us. It is a hit not only with everyone in our house, including our picky son, but also a huge favorite for anyone who visits.

 

Ingredients:

1 cup old fashioned oats

1/2 cup of almond butter (We use Barney’s almond butter because it is free of peanut contamination, unlike many other brands.)

2/3 Cup unsweetened coconut flakes (toasted at 350 degrees for 6 minutes, flip them half way through)

1/2 cup chia seeds or grounded flax

1/3 cup raw honey

1/4 cup Enjoy Life mini chocolate chips

1 teaspoon vanilla extract

Directions:

  1. Combine all ingredients.

  2. Chill for 30 minutes

  3. Roll into balls

  4. Store in an airtight container for up to a week.

  5. Enjoy!

Notes:

  • Substitute any other nut butter including peanut butter if safe for your family.
  • For a protein boost, add in some protein powder.

These are a great way to satisfy that sweet tooth and get some much needed energy along the way.

 

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Chocolate Covered Heart Cookies

I have always loved to bake and experiment with recipes out there. However after TJ’s anaphylactic reaction, I became paralyzed in many aspects of my life including my passion for baking. Like I’ve stated in previous posts, I spent the next two years, avoiding… avoiding and avoiding, paralyzed by that fear. For most of my life, I was the person who would enthusiastically volunteer to bake for events,.  However, I avoided this at all costs now. It was easier…

it was safer …

it was what I did to handle the fear the world of allergies brought.

I mean they do say FEAR = false evidence appearing real.

However, soon I started to learn that I didn’t need to do this and that in fact, parties and events that set up an incredible challenge for us…

…were really bringing us an incredible opportunity.

FEAR = forever embodying amazing revival

That’s when we started to experiment with recipes and began to create our allergy-safe recipe book. Yesterday, I took the day off to prepare a couple items for my future sister-in-law’s bridal shower today. One of those preparations involved creating this very recipe with TJ (who has already eaten 3 of these cookies).

So here you go: the perfect heart cookie drenched in scrumptious chocolate and everlasting love.

Heart Shaped Cookies (dairy, egg, peanut free)

Oven: 350 degrees

Time: An hour (But the dough should sit in the refrigerator for at least an hour before using.)

  • It makes 24 cookies.  I doubled it to make enough for the event.

Ingredients:

  • 1/2 cup non-dairy butter (We used Earth’s Balance)
  • 1 cup sugar
  • 2/3 cup applesauce
  • 1 and 1/2 teaspoons vanilla extract
  • 3 cups flour
  • 1 bag of Enjoy Life chocolate chunks
  • 1 tablespoon Nutiva Shortening
  • sprinkles of your choice

Directions:

  1. Melt the dairy free butter. in a saucepan.
  2. Mix the DF butter with sugar.
  3. Stir in apple sauce.
  4. Then, add vanilla.
  5. Slowly mix in 3 cups of flour.
  6. Place dough in plastic wrap or even a plastic baggie after shaping them into a disc. Place in the refrigerator for at least hour, or up to 24 hours.
  7. Preheat oven to 350 degrees.  Line a sheet pan with parchment paper or use some of the DF butter and flour to grease the pan.
  8. Roll the dough in a 1/2 thick rectangle and use a heart shaped cookie cutter to cut out as many as you can from the dough.
  9. Repeat until the dough is done.
  10. Bake for 12-15 minutes.
  11. Have the cookies cool completely.
  12. Use a double boiler or create your own.  I used sauce pot of boiling water and put a mixing bowl on the top of it.  In the mixing bowl on top, add the chocolate chip chunks and shortening. Stir until melted and smooth.
  13. Dip half of each cookie into the chocolate, removing excess by tapping it into the bowl.
  14. Place the cookies on a sheet of parchment paper and quickly add the sprinkles onto the west chocolate. Let set completely.
  15. Keep the cookies refrigerated until time to serve or an hour before to ensure no melting chocolate.
  • Final note: If you battle anxiety from anything,…no matter how long…no matter how deep the scars go… I promise you…you can heal.  You can defeat it.  You can overcome it.  I will be doing more posts about this and mental illness because healing happens…prayer and believe…and eat yummy cookies throughout it all!

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Shake It Again

I am all about the green shakes.   I am all about pouring as much nutrition into a burst of morning energy.   And while bananas usually steal the show of most of my shakes, this one has a totally different spin to it.

So here you go again…

Ingredients

  • 2 tablespoons almond butter (Note: almond butter pictured is unsafe for peanut allergies)
  • 1 cup green grapes or 1 cup chopped mango (although grapes work best)
  • 2 pitted dates
  • 1 cup chopped zucchini
  • 1 cup spinach or kale
  • 1 1/4 cup almond milk or protein nut milk for added protein (almond, cashew, pea)
  • 2 Tbsp lemon juice
  • 2 Tbsp flax seeds
  • 1 Tbsp chia seeds
  • Handful of ice

*Note: ingredients can be modified for specific allergies.

Mix together in the Vitamix and enjoy! This is one my husband even loves (the grape version)… a great way to sneak in some veggies … and empower you to get after that mess once and for all…well, maybe tomorrow.

And of course I need to share with my little sidekick…

And Then There Was Sesame…

Are you kidding me 2019? That was the first thing I thought of when we were leaving the allergist’s office that Monday morning in January. Really… sesame…another allergy to add to the mix.

Like I wrote about in “Some Days Just Stink,”

we had just learned that …

  • TJ’s allergy levels for this year had pretty much remained the same unlike the previous few years.
  • That he would be going into kindergarten with dairy, egg and peanut allergies.
  • Then, Madison had unsuccessfully tried straight milk with her allergist the week before. This was her final step in being able to eat anything!!!

I felt blessed that soon I would have one child who could eat whatever I ate… could eat anything at parties or play dates or restaurants …. but then …

sesame struck …

 

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Now, three times in the summer Madison had tried hummus and loved it. However, all three times her cheeks got a little red and irritated. The third time her mouth got itchy so we knew it was something to avoid and ask the allergist about.

In January, the skin test showed what we expected although we prayed and hoped for the opposite:

She had an allergy to sesame and needed to avoid it until next year when we could retest in skin and blood work.

Are you kidding me 2019? Another allergy added to the mix… and so I allowed myself the next day or two to be bummed and annoyed. But like anything, those 48 hours of sulking was enough. It was time to turn it around.

Sesame is the 9th most common allergy in the United States. However, it is one that is usually not labeled, since only the top 8 need to be. However, sesame can be sneaky.

(Sesame Allergy Post from 2015)

We are no strangers to s sense allergy as TJ once had it too. But since passing his sesame food challenge a couple years ago, he must keep it in his weekly diet 2-3 times a week. (The same protocol is used with all his past allergens.)

While TJ now loves hummus, Madison has her own favorite dip. Sesame free hummus is always an option (look for upcoming post) but also guacamole. We love organic Yucatan guacamole. But here is a simple recipe totally kid-friendly and adaptable to all taste buds.

Ingredients:

2 avocados (mashed)

1/2 of a lime (squeeze out the juice)

1 teaspoon cilentro

1/8 teaspoon cayenne

1/4 teaspoon salt to taste

1-2 tablespoons organic salsa of your choice (amount depends on how large the avocados are)

Directions:

  1. Mix the lime juice with the mashed avocado

  2. Add the rest of the ingredients

  3. For added flavor for adults, add some cayenne and cilantro to the top.

Easy enough to not leave too much of a mess behind and totally not miss sesame one bit.

 

EpiPens in Maine

Lawmakers in Maine are considering a bill all states should pass: “to allow pharmacists to prescribe and dispense EpiPens at no cost to the patient.”

See the article here:

MAINE LAWMAKER’S PROPOSAL TO MAKE EPIPEN MORE ACCESSIBLE

Every six months we have to shell out sooooo much money to purchase two sets of the generic version. (4 sets total: 2 for each child – one for school and one for home) While we feel thankful to be reimbursed for more than 3/4th of each set, that’s still a ridiculous amount of money!

Whenever I pick them up at the pharmacy, I always think about how many people… kids… babies don’t have the necessary protection that these devices bring because of the insanely high, immoral cost!

But like always, we must reflect on how blessed we are…

on how much TJ has improved since his first anaphylactic reaction …

and how we truly believe his body as well as Madi’s will be restored from all of these allergies.

But in the meantime, we stay prepared, always with two sets on hand.

Go Maine, let’s get more states on board!