Tag Archives: Allergy Levels

And Then There Was Sesame…

Are you kidding me 2019? That was the first thing I thought of when we were leaving the allergist’s office that Monday morning in January. Really… sesame…another allergy to add to the mix.

Like I wrote about in “Some Days Just Stink,”

we had just learned that …

  • TJ’s allergy levels for this year had pretty much remained the same unlike the previous few years.
  • That he would be going into kindergarten with dairy, egg and peanut allergies.
  • Then, Madison had unsuccessfully tried straight milk with her allergist the week before. This was her final step in being able to eat anything!!!

I felt blessed that soon I would have one child who could eat whatever I ate… could eat anything at parties or play dates or restaurants …. but then …

sesame struck …

 

_Embrace the storm before it ends and learn to dance in the rain, even if it tracks in some mud along the way. (11).png

Now, three times in the summer Madison had tried hummus and loved it. However, all three times her cheeks got a little red and irritated. The third time her mouth got itchy so we knew it was something to avoid and ask the allergist about.

In January, the skin test showed what we expected although we prayed and hoped for the opposite:

She had an allergy to sesame and needed to avoid it until next year when we could retest in skin and blood work.

Are you kidding me 2019? Another allergy added to the mix… and so I allowed myself the next day or two to be bummed and annoyed. But like anything, those 48 hours of sulking was enough. It was time to turn it around.

Sesame is the 9th most common allergy in the United States. However, it is one that is usually not labeled, since only the top 8 need to be. However, sesame can be sneaky.

(Sesame Allergy Post from 2015)

We are no strangers to s sense allergy as TJ once had it too. But since passing his sesame food challenge a couple years ago, he must keep it in his weekly diet 2-3 times a week. (The same protocol is used with all his past allergens.)

While TJ now loves hummus, Madison has her own favorite dip. Sesame free hummus is always an option (look for upcoming post) but also guacamole. We love organic Yucatan guacamole. But here is a simple recipe totally kid-friendly and adaptable to all taste buds.

Ingredients:

2 avocados (mashed)

1/2 of a lime (squeeze out the juice)

1 teaspoon cilentro

1/8 teaspoon cayenne

1/4 teaspoon salt to taste

1-2 tablespoons organic salsa of your choice (amount depends on how large the avocados are)

Directions:

  1. Mix the lime juice with the mashed avocado

  2. Add the rest of the ingredients

  3. For added flavor for adults, add some cayenne and cilantro to the top.

Easy enough to not leave too much of a mess behind and totally not miss sesame one bit.

 

Tbt – A “Bumpy” Car Ride

Today, we go back to the morning of January 9.  It was about three weeks since my son’s anaphylactic reaction and learning of his multiple food allergies. I had just stopped crying and was starting to think that I could and would totally make the best of all of this.  Just when I started to gain control of my emotions and life….Just when I started to feel like I was indeed a great mom for my son….

We ended up back in an ambulance to the emergency room.

AMBLUANCE

As we were driving to work and daycare, I heard my son gagging in the back.  So, I pulled over and saw that he had a red rash all over his chest and neck. In addition to this, his throat was slightly swollen. I panicked, called my husband to come, yelled to two random guys in the parking lot to help me.  I had no idea what was going on.   He had only nursed that morning and I had cut everything that he was allergic to out of my diet. I did not understand what was going on. I was terrified that I would need to administer the EpiPen.

Within minutes, a cop was next to me and calling for an ambulance.   My husband also soon arrived.  As I held my son, I knew that this was a different kind of reaction from his anaphylactic one to yogurt.  He even smiled  at my husband and the cop at one point.  Of course, like the night of December 13, it was snowing so it took a little longer than normal for the ambulance to arrive.

SNOFLAKES

While we took the ambulance to the hospital, he did not need anything but Benadryl. Within two hours, we were on our way home and scheduling to meet with our allergist.

After the allergist, we learned some new information about my son and living with food allergies.

  1. My son was diagnosed with dermatographic urticaria. Click here for more information about this skin condition.  This mixed with his multiple food allergies was making everything more complicated. He has very sensitive skin and gets random hives and reactions to environmental factors in addition to having many food allergies. Therefore, he needed to start taking a low dose of Zyrtec at night. With this Zyrtec, we would hopefully be able to control “random” environmental hives and reactions.
  2. More food allergy testing was done but testing is tricky at this age because they are so young and it’s not so accurate. This is when he ordered for many fruits, vegetables, and meats to be tested.  They also tested for autoimmune diseases.
  3. I also learned that in addition to his EpiPens/Auvi-Qs, I should always be carrying Benadryl with me too.

AUVI-Q

After blood work results…

Based on his IgE levels, my son would now need to avoid soy and sesame in addition to the others (dairy, eggs, peanuts, tree nuts, oats, barley, wheat, coconut). However, we also gained some positive news.   All of the other tested fruits, vegetables, and meats were safe for us to continue to introduce.   This also included rice and corn which have been beyond helpful to his diet.  We were also informed that autoimmune diseases were not something that my son was dealing with based on these levels.

Today as I look back at some of the scariest times of my life, I realize how far we have already come and how much we all have grown in the process.  Despite it all, we know that we have so much to be thankful for so we smile on…

tj cartoon

My Random Musings

The Truth Must Not Tiptoe

To You or Anyone out there that is ever asked to watch over my son for just a moment,

I must start by explaining how challenging this week has been. I stopped myself from writing this sooner because it would have had a much more angry tone. I do believe that emotions are much clearer once they have had a day or two to sort themselves out and time to be slept on…

sleep

With that being said, I can no long tiptoe around certain facts but instead I must wear “crazy mom” proud in hopes that the blatant truth even grabs your potential ignorance for a second. So while I write this, I pray for empathy…

 MOCKINGBIRD

To start, let me recap.  My little guy is not eating at daycare yet again. It started on Tuesday with two days of refusing any food from 7 am- 2:30 pm. On Tuesday, he ate nonstop when he got home though until he went to bed. That did change the later part of the week when he started to refuse many foods at home too. We are not sure what is causing this?

Is he cutting more teeth? (The bottom canines are right there about to cut through and the top canines reeked havoc a few weeks ago.)

Is it the cold and cough he had?

Is it being a toddler and going through yet another phase?

Is it all of the above?

Or, is it something else…

Heck, maybe he is bored with his restricted diet and we need to start getting more creative.


Whatever the reason for this strike is …

No matter how frustrating it may get …

No matter how challenging it is to manage a child with multiple food allergies …

There are several factors that are imperative for you to know:

1) The guidelines and safety procedures that we worked on for him during mealtimes were not created to make your life more difficult. ( Click here for daycare accommodation post.) Instead, they are meant to protect my son’s life. We do realize how challenging it is to manage many active toddlers and truly appreciate that all of you have agreed to work with us despite the allergies.

2) Please don’t tell me that my son no longer likes bananas when you haven’t even peeled it for him. I do thank you for the confirmation that my son is advanced but I am not so sure any 17 month old toddler is communicating enough at this point to inform you, “I won’t be eating bananas anymore so there’s no need to peel.” I am hoping that this is just teeth and a phase which will soon pass. I send in bananas every day because I am hopeful he will start to eat them again. Hope is what I thrive on…

3) Please don’t take it upon yourself to stop using the high chair we provided for snack and mealtimes because it is inconvenient to strap him into it then have to unstrap him five minutes later when I arrive to pick him up. Your inconvenience takes up ten seconds of your time that I am willing to take off your hands and do myself. Those ten seconds can protect his life.

4) Actually, let’s go back to the topic of actual food again.   Please refrain from telling me he no longer likes any of the food I ever provide. I can assure you that I know my son best and understand how his diet is very repetitive. I too believe he is bored with his food and I promise you we are working on it.  We don’t have as many options as most do and introducing new foods is often a frightening task.  With that being said, please also hold back from telling me to cut back on the amount of food I send in. What inconvenience does it cause if I continue to send in what he was typically eating at home during the summer?  …Once again, I am breathing on hope…

5) My son had an anaphylactic reaction to a tiny amount of yogurt. His dairy IgE levels are still very high as are the components of it that are more likely to cause anaphylaxis.  Therefore, there is a greater chance of a life-threatening reaction if he was to ingest it again. Many foods (more than you think) that people of all ages consume contain dairy.  Soooooo…..

He should never ever ever be playing next to another toddler or young child who is eating. The webcam shot is beyond terrifying especially since it wasn’t an adult who removed him from the area but instead, my 17 month old son himself. This is his life we are talking about. One taste of any of it and he needs his EpiPen or Auvi-Q administered. If he is the one removing himself and not an adult seeing this situation, I am not so sure how that can happen. It causes my fear to challenge my faith…

Please tell me how to make this easier for you to monitor him. We tried getting him a private one-to-one nurse for mealtimes … We bought him his own high chair for meal times … We will buy gates to separate the eating and playing areas if need be. I will do anything to ensure his safety and help all of you. I pray throughout each day that God guides me through all of my decisions and actions especially those that relate to my little guy. I pray you tell me how I can help you protect my son. Prayer drives my faith…

I know there will be close calls in general because of sending him to daycare.   Right now, it is not an option financially for me to stay home with him and protect him. I wish there was an easy answer to all of this. I wish that there were daycare facilities out there free of the top 8 allergens, not just tree nuts and peanuts. People don’t just have anaphylactic reactions to nuts you know? (Why aren’t there facilities like this especially with the prevalence of food allergies so high and increasing?)

If you or anyone out there is ever asked to watch over my son for just a moment, I pray that you can stop focusing on me as the crazy mom that I know you have labeled me as already.  Instead, I pray that you turn that focus to my son’s best interest and when you have questions ask me or suggestions suggest them to me.  Trust me that I am more than you think I am….

DAVID GOKEY

Instead, put aside your ignorance for a second and remind yourself that this is about life. My son’s life depends on it. So, open your minds and hearts by first tuning in your ears and actions.There are already too many “what ifs” in life to have to worry about factors that can be controlled.  Is it wrong of me to expect this? Are my expectations too high?

Until I have more answers next week, I am challenged by some fears. I fear that I will start to hear daycare facilities tell us that they cannot have my son. I worry that he will not be able to have the same experiences in life as others his age. I want to make his life as amazing as possible and teach him that food allergies like any challenge in life, can’t define you.   Only YOU can define yourself! 

But I need your help…

I am no longer angry at anyone… for I never stay that way for long. Instead, I am more motivated than ever to continue this journey of advocating and protecting my little “Cutes.”

LOVE

I hope that my honesty can help shut the door on ignorance for at least one person.  In the meantime, we thank you God because it is very evident that you are walking right beside our son, holding his hand through this valley, this journey that we can’t tiptoe around.  But with your strength and the truth, we can battle and smile on…


See more about allergy levels here:

Allergy Level Post

Dairy Components

Tbt – Coconut Milk Food Challenge (Take 1)

It was March 4, 2015.  The day that I had internally dreaded and battled for weeks and weeks now had arrived. Today would be TJ’s first food challenge where he would ingest coconut for the first time.

COCONUT

But before we recap that day, what is a food challenge?

According to Foodallergy.org, an oral food challenge is a highly accurate diagnostic test for a food allergy.” It is done with an allergist at a medical facility due to the potential risk of an allergic reaction. See more here: 

Oral Food Challenge – Resource 1

FOOD CHALLENGES

(Check out the link below for this awesome resource…)

Oral Food Challenge – Resource 2

(Source: http://www.kidswithfoodallergies.org/)


Since TJ was 10 months and allergic to most varieties of milk (almond, soy, cow’s, goat, oat, coconut), we were trying to figure out what route to take after I stopped breastfeeding. I do not regret for one second doing that crazy strict elimination diet from December through June to continue breastfeeding as I know that it was best for TJ’s health and safety during that time. However, we prayed that TJ’s body would mature and be able to thrive on another option as well. I could not breastfeed forever.

Therefore, his doctors analyzed his blood work to devise a plan. To complicate matters, testing for allergies via blood work is not always accurate. People can have false negatives and false positives within their results. (For more about blood tests and its accuracy, click here.) Because of his dermographism, skin testing is not an option right now. His skin reacts to many substances due to being hyper-sensitive, not only due to allergies. According to blood work IgE levels, coconut was his lowest level of his allergies.  Therefore, in theory, he had the least chance of having a reaction to coconut.

(Despite that, it is important to note that there is ALWAYS a chance of a mild or even severe reaction at any level. With an IgE level of 0.6, I was never told to eliminate coconut from my diet during the six months of the elimination diet.   Our doctor, allergists, and nutritionist all agreed, this was PROBABLY not a true allergy.)

Click here to see my post on Allergy Classification.

Still I did not find comfort in the “probably.” Actually, I’ve never found comfort in the “probablys” in life. (Ask my parents…  I drove them crazy growing up, insisting on a “definitely” if I was ever told “probably.” Now, I am still that same persistent self…. my poor husband … )

EMBARASSED

Anyways, I prayed and prayed that God would guide us and protect TJ.

FAITH 10

On the morning of the challenge, TJ woke up and he nursed like usual. After feeding for a few minutes, he unlatched and puked all over.  This had never happened before even before our elimination diet. This was different. It was not allergy related. It was his first stomach bug. The food challenge had to be postponed, and later cancelled until further testing.

I took it as a sign back then that his body wasn’t ready for any food challenges and that we would wait until his allergies were retested around his first birthday to come up with a plan.  For me, the exact timing of the stomach bug was not a coincidence. Instead, it confirmed that this was indeed God’s way of protecting TJ and showing us not to put him in the food challenge back in early March.   How amazing is that!

god is good

4 months later (in July)…

After his first birthday, TJ passed both a soy and pea oral food challenge. He was and continues to do wonderfully with both. It was recommended that he also participate in a coconut milk challenge then at 14 months old.  This time around I was not as worried as I had been in the past.  His body seemed to be making such progress with allergies. But we would soon learn why that word probably is often used…

TJ’s blood IgE level for soy was higher than coconut ever was. He passed soy and consumes it every day since. However, his body would reject coconut milk and cause him to mildly vomit and develop an itchy mouth when he went on to challenge it with his allergist. Therefore, despite levels, coconut is a true allergy and soy may have never been.  It is either crazy frustrating or fascinating … but all depends how you chose to look at it. All of this drove me crazy for awhile but now I accept it as part of this world of food allergies…

Looking back, I truly believe TJ would have had a worse reaction to coconut if he had challenged it back in March. Thank God for that “”perfectly-timed” stomach bug… . Never thought I’d say that

Most importantly, thank God for protecting him not only that day but every day, giving us more reasons to smile on even if it is without coconut…


What are your thoughts on or experiences with food challenges?  

Looking back, has anything negative like a stomach bug ever come at the “perfect” time for you?

 I’d love to hear what you have to say. 

<a href=”http://honestmum.com/category/brilliant-blog-posts/”><img style=”margin-left: auto; margin-right: auto; display: block;” src=”http://i.imgur.com/fJzNWoE.jpg&#8221; alt=”Brilliant blog posts on HonestMum.com” width=”301″ height=”189″ /></a>

Domesticated Momster
<div align=”center”><a href=”http://mummyandmonkeys.com/category/Pick-n-Mix&#8221;

Weekly Smiles (Events)

Here is a list of Smiling Away Allergies’ weekly events:

TIPSy Tuesdays

On Tuesdays, I plan to post tips that we have found helpful or something that we have learned during this journey so far. I call it “TIPS”y TUESDAYS not only because I must admit to being a bit corny at times, but mainly because I want to help others be prepared.  Therefore, once a week we will CHEERS to being prepared so we can smile on…


Worry-Free Wednesdays

Each Wednesday I will try to post a quote or lyrics to a song that I find inspirational.  Words that help me see past fear and worry, enabling us to continue to smile on…


Tbt (Throw Back Thursdays)

On some Thursdays, we will throw it back to some of the earlier signs and experiences with food allergies/eczema as well as what we have learned through it. Regardless of what should have or could have happened, we smile on together in trying to educate others about the world of allergies…


Favorite Finds Fridays

I plan to post a “favorite find” on Fridays.  It may not always be directly relate to food allergies and eczema.   However, it will always be something that has helped us a lot with TJ’s experience, allowing us all to smile on in faith…


SMILING ON...

(Source: http://www.firstcovers.com/userquotes/39076/let+your+smile.html)


“18 Things to Know About Food Allergies” E-book

Great resource once again by Allergic Living !

18 Things to Know About Food Allergies E-book

LOVE

Peanut Components (A Post in Progress) – UPDATED September 7, 2015

Source: Peanut Components (A Post in Progress)

To add to this post, here is a very informative article by Dr. Sharma where he discusses blood work results and likelihood of allergies.  What a confusing world of food allergies! However, I wanted to share this information so we smile on…

Do Blood Test Results Show Allergy Likelihood?