Tbt – The Medical Mystery Month

For this week’s “TBT,” I plan to recap this past month as it proved to be one of the most challenging ones for me.  I must first start by saying that I am forever grateful to my husband, family members, and friends who helped and supported me during those four weeks of emotional and physical turmoil.   In those moments, days, and weeks, when I felt that my world was spiraling out of control, it was and is comforting to know that you guys never left my side.   You fully supported me even when I wasn’t sure of how to support myself.   Anyways, with that being said, here is a recap of my wild ride and some of the lessons that I learned.

Difficult roads often lead to beautiful destinations._.jpg


Before I start, let me remind you that I am NOT  doctor and this is all my personal opinions based on my personal experiences.   Also, this is a long post.  

Disclaimer: This blog is a personal blog and used as a way of sharing and connecting with other readers. The posts, articles, and stories shared on the site are meant as a source of encouragement. In this challenging world of food allergies, I have found reaching out to other parents and people in my shoes to be extremely resourceful and inspiring. Therefore, I want to give back and do the same. The information on my blog is not intended as medical advice so as always, please consult with your doctor.


 

November 6

  • Found out I was pregnant with my second child.   I was beyond excited!

November 9

  • Visited my Nana in the hospital as she was not doing well.  She had a stroke last December 2014 and has been in and out of hospitals since.   Throughout it all, she remained one incredibly strong and inspiring woman.

November 11

  • While teaching, 7 bugs are found during two of my classes. One was even on my arm.   I squashed it and continued on.   Then, we soon found out they were German roaches. I moved my classes and all of the materials from my classroom for the next couple of weeks.
  • My son’s lip got red after eating apricot for the first time.   I am not sure if that was just that his skin was sensitive or a minor reaction. However, I monitored him until I myself started having symptoms.
  • The left side of my stomach started to throb.   The pain continued to get worse and worse leading me to urgent care.   They checked me in, asked for urine, and then told me that they didn’t have time for me since they are closing in 40 minutes.   They sent me to the emergency room where I spend the next 8 hours (7:30 pm-3:30 am).
  • Joint pains and chills started.

Medical Verdict: Start of a possible miscarriage or implantation especially since my hCG number was low

My Personal Verdict: I stayed hopeful. I stopped my daily running and took it easy but deep down, I knew it was too late for implantation.   Still I prayed for a miracle.


 November 13

  • Bleeding started
  • I knew that I was miscarrying.
  • Flu-like symptoms began to get worse. They included horrible joint aches and pains.  Back chills continued to get worse.

Medical Verdict: OB/GYN told me to go to the urgent care the next day and have hCG tested.  He thought that I was having a chemical pregnancy.

My Personal Verdict:  Still I prayed for a miracle. I felt horrible and like I had the flu.



November 14

  • Miscarriage was confirmed.
  • Since my flu-like symptoms continued, my OB/GYN sent me back to the emergency room because he believed something else was going on.  This was where I spent another 6 hours of my life.

Medical Verdict: I was once again reminded that I had a miscarriage.   They tested for the flu and diseases such as lyme.   Everything came back negative.

My Personal Verdict: While I was extremely upset, most of my focus was worrying about my health.   I felt so weak with joint pains and body aches. I believed that something else was wrong.   I kept bringing up the roach that was on my arm and doctors continued to tell me that it was unrelated.   To me, it was just too weird that this all started right after one was on my arm.


November 16

  • I was instructed to see my primary doctor.   However, since mine was not available, I saw another doctor in the group.
  • Chills and body aches continued.

Medical Verdict: She ordered more blood work and a back x-ray.   Everything came back normal except my C-Reactive Protein (CRP) level was high. I was told that this was nothing to worry about but just meant that there was an infection or inflammation of some sort in my body.   It might be the miscarriage.

My Personal Verdict: I still felt awful.


November 17-21

  • My join pain, back aches, and bleeding started to get gradually better.
  • Jaw pain and pressure began.   I felt like I was shaking but no one else noticed.
  • Random bouts of blurred vision started and some vertigo.

Medical Verdict: Body was recovering from miscarriage and now doctor told me that she believed this may be anxiety.

My Personal Verdict: Knowing that I had a history of anxiety in my past, I knew that I was going through a stressful time. But, I truly believed something was wrong and going unnoticed. Yet, I agreed to see a therapist and acupuncturist. I needed to feel better. Also, I ordered Young Living essential oils  to try to heal myself since no one else seemed to be able to help me. At night, I started to mediate.


November 26-27

  • We visited my Nana which would turn out to be the last time we would see her before she passed away.  (I love you Nana!)
  • On Thanksgiving, my vertigo and blurred vision began to get worse.   This continued all weekend.   I still had throat, neck and jaw pain.  My ENT was not in the office so I went and saw another one.

Medical Verdict: That ENT told me that I had TMJ due to the stress of the miscarriage.

My Personal Verdict: I cried all the way home because I was feeling worse and truly believed there was something more than just anxiety causing all of this.


November 28-29

  • Dizziness was getting worse and more frequent.
  • I saw a therapist.  Maybe it is just intense anxiety? However, she believed it was more than just that.  This made me feel slightly better.
  • I saw a doctor for the white spots that I now saw in my throat.   My collarbone and neck both started to hurt even more.

Medical Verdict: The doctor told me it was due to the hormones of the miscarriage; however, I also was diagnosed with pharingitis. He stated that it should pass on its own because it was viral.

My Personal Verdict: I was losing hope… but hanging on…the blurred vision and dizziness happened frequently and especially if I ate a large meal.  I began to research lyme disease in depth because none of this mad any sense. Plus, several doctors kept mentioning lyme disease.


November 30

  • I asked that my classroom be tested for mold and the air quality because of flooding several times and the roach problem.   I found out that my classroom had a low impact roach cream used without me knowing.   I also found out that my classroom had too much carbon dioxide in it.   Therefore, I was told that my windows should always be opened a crack.   The problem was that I only have two windows.   I began to think my classroom was making me sick…
  • I saw my regular, amazing ENT.   She was concerned with the environment I was teaching in and had me tested for so many factors (including lyme, autoimmune diseases, carbon dioxide levels, and sooooo much more.) She also sent me to an allergist and hearing specialist.
  • My dizziness got worse.  I had to pull over a lot when I was driving because of these dizzy spells.

Medical Verdict: While I was still a medical mystery, she encouraged me that we would figure this out.   All of this blood work and testing came back normal except two parts.  1) my CRP was still high and 2) my hearing test showed an imbalance coming from somewhere but not my inner ear.

My Personal Verdict: I prayed for answers and had hope in my ENT. But after the results and my persistent symptoms, I was left even more frustrated.


December 1

  • My dizziness and blurred vision was horrible when I woke up.   Since my vision was so blurry and I was incredibly dizzy, I had a breakdown.  I couldn’t drive. I couldn’t multitask anymore like I was always able to do.   Everything took so much longer to do because of the incredible amount of concentration it took to do it. Not to mention, concentrating was nearly impossible. It sparked headaches and migraines on some days.
  • I went to the ER for a third time. Embarrassed to go again but feeling helpless…

Medical Verdict: They had a neurologist see me.   After a CAT scan and MRI of the brain, they ruled out bleeding of the pituitary gland, MS, and other conditions.  They sent me home and told me to see an eye doctor.   The eye doctor informed me that my eyes and vision are actually starting to improve.

My Personal Verdict: I felt like I was losing my mind.   I started to believe it may be horrible, horrible anxiety.


December 3-7

  • In addition to my lingering symptoms, it was now painful to sit down.  My OB/GYN wanted to see me.   She tested for an infection and made me get an ultrasound.
  • Daycare called me after my son was there for only an hour and told me he was wheezing. He had never wheezed before. He also had some hives.  Therefore, for safety in case it was an allergic reaction to something, we took an ambulance to guess where…. the ER again!   After we left that Friday, we spent 5 hours that weekend at the doctors’ office, giving my son breathing treatments.
  • He woke up Monday with a fever and sounding worse.   I took him to see his pediatrician and another doctor in the group.

Medical Verdict: He had a horrible case of pneumonia.   They almost hospitalized him. Instead, they gave us a strict list of treatments and medication to give.  My ultrasound and infection test both came back normal.

My Personal Verdict: I stayed as strong as I could  for my son but my dizziness and blurred vision both continued. Neck, collarbone, throat, and upper chest pain also continued to get worse. I did not know how I was functioning and getting through each day. 


December 8

  • Neck, collarbone, throat, and upper chest pain was bad.
  • I almost passed out in my class.   My amazing co-worker/friend told me that she would not allow me to drive. Instead, she insisted on driving me to appointments with my chiropractor and a rheumatologist.
  • The amazing woman that I was beyond blessed to have called Nana passed away to be with the Lord and my grandpa. I missed her so much from that very second.

Medical Verdict: Rheumatologist told me that she couldn’t find anything wrong with me in her area of expertise.   However, she ordered more blood work to see if my CRP level had dropped to normal and gave guidance on more doctors to see next.

My Personal Verdict: I kept praying for my health to be restored and that my Nana was out of pain now and in peace. I was emotionally and physically drained. I didn’t know what to do anymore so I continued praying and using Young Living essential oils.  I even put a drop of lemon oil in my glass of water before bed.   I needed a change.


December 9

  • I woke up not dizzy and feeling better than I had in weeks.   I ate and didn’t have blurred vision.  This was the first time in weeks.   Like a migraine when it starts to fade, I worried that the vertigo and blurred vision would come back.
  • I got my blood work done.

Medical Verdict: I found out on Thursday that in this blood work my CRP level was finally normal again!!!

My Personal Verdict: I continued to pray.


December 10

  • I woke up and could barely move my neck.  It hurt so badly to swallow anything even water.   Difficulty with swallowing hot liquids started a week ago.
  • I saw my ENT.   I only got dizzy and blurred vision here and there.
  • I found out that I may have been exposed to a type of pneumonia awhile back.   But the reality was who knows what I was exposed to with all of those hospital trips.

Medical Verdict: ENT encouraged me and told me that based on my CRP level finally being back to normal it seemed like my body was finally doing what it was suppose to do.  It was fighting whatever infection had been in my body. This also explained why my lymph nodes and muscles all around throat and neck were inflamed. She believed that this was probably the same back-to-back viral/bacterial infection that caused my son’s pneumonia.  However, mine was in my bronchial tubes and esophagus, not my lungs.  Since my miscarriage made my body weakened, it was theorized that I wasn’t strong enough to fight it off until now.

My Personal Verdict: I cried.   I personally do everything possible not to take any kind of medication even Tylenol.  Now, I was going to have to take a strong antibiotic that I never had before.   I was terrified and prayed for direction.  Reluctantly, I took the medication. I scheduled an appointment with a lyme specialist just in case the medication did not work. I continued using essential oils.


December 13-14

  • In many ways, I was feeling so much better.   I only got dizzy like once or twice a day.
  • However, my upper chest and collarbone pain continued.  And I coughed up blood.

Medical Verdict: I was told by one doctor that I had acid reflux and needed to take two other medications.  After speaking with my ENT, we decided that I would not take these.   Another doctor told me that she originally thought it was anxiety but now it appeared that this was indeed a viral/bacterial thing.

My Personal Verdict: I finally surrendered.  I couldn’t see anymore doctors except my ENT and chiropractor. In all of my life, I had never seen so many doctors.  Therefore, I needed to ride out this storm and believed that God was healing me.   He was guiding me to take the right steps to restoration.


December 15 – Now

Current Health & Lesson Learned

  • My son is 100% better! After seeing a specialist, he does not have asthma.   It was just triggered by this crazy viral/bacterial infection. Our fingers are crossed as we pray that he does not catch something similar again this winter season.
  • I am back almost back to my “normal” self again! I do have some brain fog and other symptoms lingering.
  • We have both ended our medications. My doctor put in another 10 days of mine; however, I may try to see a doctor before taking it to ensure that I really indeed need it.
  • Now, I am even more focused on rebuilding our gut health.   To make myself feel better about being on antibiotics, I am thinking of it as starting from a clean slate, building my gut health from scratch.   (Although it may not be the medical way to look at it, this has become my inner drive: to improve my overall health despite the recent challenges.)
  • I have scheduled an appointment with a new primary doctor in my hunt to find one that I can trust.
  • I learned how many amazing, loyal family and friends I have.   I learned that my husband truly stands by my side no matter what.
  • Last but certainly not least, I now value how important one’s health is.  For years, I took for granted how healthy I was. Also, on a personal note, I took for granted living in the moment by being truly present. Even when I felt the sickest, if I focused on being present in the moment, I felt emotionally at peace. This Christmas I celebrate how incredible blessed I am to be restored back to health with my loving family and friends by my side, embracing each and every precious moment. And that is why I smile on even bigger in faith and hope with my Nana, my special guardian angel by my side…

_Life is short,Break the Rules.Forgive quickly,Kiss slowly.Love truly, Laugh uncontrollably.And never regret ANYTHING,That makes you smile..jpg

 

 

 

 

 

6 thoughts on “Tbt – The Medical Mystery Month

  1. remyaanoop

    It sure is harrowing when you are ill, and it becomes tough when you have young kids at home, who are also unwell.
    Glad you and your family are back to your normal self, a Christmas blessing!
    Sorry about your Nana!… God Bless her soul!

    Liked by 1 person

    Reply
    1. smilingawayfoodallergies Post author

      Thank you for your kind words and blessings ! 😄 I wish you and your family a blessed holiday and new year !

      Like

      Reply
  2. jncthedc

    That is quite a detailed history. I’m glad you’re feeling better. Hopefully you are given a break from any issues as you move in on this joyous time of year. Wishing you better health and much happiness through the holiday season.

    Liked by 1 person

    Reply
  3. Nena

    What a whirlwind you have all been through:/ My deepest and sincerest condolences for your miscarriage and for the loss of your Nana. Healing does take time, but happy to see you are all getting closer to it day-by-day.

    Liked by 1 person

    Reply

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